Autism Journey

Autism Assessment Day

Another day another nervous appointment, Autism Assessment Day. It’s the not knowing and waiting, wanting it to be over that it does not matter what the results as things will be in place for January. Speech and language therapy has given me something to do with Monkey to help her speech come along. They’re also putting an early intervention in place for a nursery, it’s so hard to realise, and there is a lot to process. And I know I’m luckier than some people and I feel for them, sending hugs. My heart hurts thinking about all what we have to overcome and go through, and I am thankful that we got the results earlier in Evie then poor KK she has had a hard time in school. 

 If I were to take a guess, I would say Evie has 

  1. ASD
  2. ADHD
  3.  OCD 
  4. SPD 

Autism Spectrum Disorder is an extensive umbrella of symptoms. 

 

What to expect from an assessment day?

Be prepared for two hours of questions about eating, sleeping general behaviours Play – does he/she interact with others?   

What hurt most was there is a chart side A and B.

you had to have all three listed on side A to continue to side B. Criteria for side B was one, Evie hit all four boxes. That’s when it hit that my worries were now a reality. My world stopped moving, and it was like the air went out of my body.

Waiting for the words to trickle out “I’m sorry to say your daughter has Autism”

I wanted to cry for my girls, not only for how long a fight I had for KK 8 years! 

To get two Autism Assessment Day diagnoses in the same year

I’m feeling better a day after just needed my mind to stop spinning and reeling from the news. I know a lot will be put in place for Monkey now for January 2017. And there is a meeting next Thursday to look at the nursery. 

My worries are because Evie is non-verbal; when I was there, a little boy pushed her off the bike she was on. 

Ok healthy kids do this they show their dominance, but Monkey couldn’t say what had happened, that she hurt her hands and that the boy did what he did. She is no way ready for potty training so we will be put into a pee and poo group to learn strategies for potty training. On top of all this, I have a cygnet group I need to go to so that I can understand KK more. I honestly feel like my world is spinning.